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From Rights to Reality: EHDS and Patient Needs in Integrated Long-Term Care

This webinar was held on 22 June 2026, supported by EHTEL and the Laurel and xShare projects. The joint webinar brought together contributors from both projects, along with experts. 

The session asked fundamental questions along these lines:

  • What do patients and informal carers need from digital data sharing in integrated long-term care?
  • How can citizen-mediated data sharing be guaranteed?
  • Are current policies and tools answering these needs?

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Watch the video below to see the presentations and the panellists' PowerPoints.⤵️

Overview and general background

Sara Canella of EHTEL introduced the webinar and Laurel project. 

Speakers' presentations

💠 Hanne Veugen: The Flanders Experience: Alivia and Caring Neighbourhoods

 

💠Michael Strübin: The Yellow Button and xShare: Citizen Data Portability in Action

 

💠Mitchell Silva: The Patient Perspective: EUPATI and Meaningful Engagement in I-LTC

  

Watch out for more on the work of both the xShare and Laurel projects over the end of 2026 and start of 2027, especially in terms of the potential for next steps.

Find out more about the Laurel project

Find out more about the xShare project.

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